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Dawn Levitt's avatar

Your story sounds very similar to mine. I was also born with a congenital heart defect. When I first went into heart failure at the age of 36, the first doctor I saw told me my shortness of breath was due to my weight and told me to lose weight and I would feel better. No EKG. As it progressed and I rotated through my family doctor, urgent care, and eventually the ER, I was diagnosed as having the flu, bronchitis, pneumonia, and pregnancy. Apparently, my distended abdomen from congestive heart failure had to be a baby. Eventually I received the correct diagnosis, but the damage was done. I am now living with my second heart transplant.

Over on my page, I write about my journey of healing. Come over and visit sometime!

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Stacey Kowbel's avatar

So glad you resisted the urge to not seek medical attention! While I don't have any significant diagnosed health issues at this point, I do have to advocate for my health, which can be exhausting. While I live in Canada and don't have the insurance challenges, we do have system challenges that create major healthcare issues, leading to the need to advocate for your health when you don't have the energy for that advocacy. My sister-in-law is a great example - she was having increasingly horrible migraines, which she had never had before. I have an acquaintance who had this similar experience and it was a blood clot. I urged her to get checked out because this wasn't normal for her. Her doctor laughed, scoffed that "it's not like you have a brain tumor", but sent her for a scan. Turns out she has a brain tumor and was in a coma for a couple of days following her diagnosis. The lesson, you need to pay attention to and listen to your body. I recently experienced my own scare which led to getting a brain MRI, which the doctor said I'll eat my hat if anything show up, and lesions showed up. At this point they seem benign, but they're there, and they could be something.

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